Many moons ago we did a photo shoot with two toddlers - Delilah and Harriet.
This year we got to catch up with them - fifteen years on and this time as teenagers. It was lovely to hear how their friendship had formed at the previous photo shoot and how they have kept in touch ever since.
We took a bunch of new pictures about different hobbies and activities. We talked about childhood memories. It was a great afternoon with lots of energy and excitement.
#DisabilityHistoryMonth
#inclusion #disabilityhistory #learningdisability #journalism #research
Arthur Pew was a lance corporal in WW1, trusted with responsibility for his fellow men.
Pew also had a learning disability.
Before signing up, he was regarded as incapable of contributing to society and was segregated in an institution.
This is an old piece for @BylineTimes but one I loved writing with brilliant campaigners at UK charity My Life My Choice:
I added this to my profile.
"If it is interesting, boost it. You are not on Twitter"
There is no algorithm to help us here #Mastodon. So if you believe others should see it, #boost it. A favourite is just an individual token of appreciation.
This is one of my key learnings from a couple of weeks here...
Get your glad rags on and get ready to celebrate.
Free tix to #LDALeadersList celebration event this Friday.
#FridayFeeling
buff.ly/3OxfrNT
Need a flash of joy? Here's a new short film of highlights from the recent Dance Westminster competition in London.
I had the total privilege of being involved in this annual competition, with people of all ages and abilities, everything from hip hop to modern ballet, ballroom, Bollywood, The Twist.
Smiling!
Kudos to the pioneering Step Change Studios.
A bit niche, but I'm looking for people in the #RettSyndrome #SETD5Syndrome #Autism #LearningDisability #Epilepsy community. Our daughter has all of the above. Would love to meet fellow #ParentCarer #UnpaidCarer folks
this is a beautiful read https://makingchromosomescount.co.uk/2022/11/14/just-the-way-she-is-rett-syndrome/
Inadequate care
Since July 2022 I've been reporting on Twitter, detail of care rated inadequate for #learningsdisabled and #autistic ppl, by the Care Quality Commission in England.
I've written a post about the current state of care in England (based on 1 Nov CQC data release) here https://www.georgejulian.co.uk/2022/11/20/care-homes-for-learning-disabled-and-autistic-people-in-england-providing-inadequate-care/
I'm interested in whether people would wish to see inadequate care highlighted here in the same way? Pls share, TY
#disability #socialcare #learningdisability #autism #healthcare
Autism, learning disability, hospital
Had privilege to hear Alexis Quinn talk this week about her book Unbroken: Learning to Live Beyond Diagnosis.
A truly brilliant individual. Her book is a hard read, rage inducing, but necessary.
This week the latest NHS monthly data was released that shows:
* 2k people with learning disability and autism are in hospital in England
* over half of those have been there for over 2yrs
* 17% have been in hospital for over 10yrs
If you want to see Mastodon at its best, strongly recommend these options:
Android - Use apps Tusky or Fedilab
iPhone/iPad - Use apps Metatext or Toot!
💻 Computers - Log in through your server's website
Mastodon was designed for websites and third party apps. These are *still* the best ways to use Mastodon!
(Official app exists because new people were only looking for an official app in app stores, and giving up when they didn't find one. You don't need to use it!)
As someone who regularly uses screen readers and works with blind colleagues who rely on screen readers to access the internet, please let me assure you that using #hashtags within the body of a post is not a problem.
You don’t need to move them to the end!
It is helpful to use #CamelCase to avoid gibberish for many word combos, but the extra # is so minimal as to disappear given how much else screen readers say & how fast they speak to experienced users.
A few recommendations for life on Mastodon:
1) Follow anyone you think looks potentially interesting; you can always unfollow later, and they may lead you to new people via boosted posts.
2) Boost posts you think are worthy, so others can discover new content.
3) Don't obsess on replicating your Twitter follows on Mastodon; let it be its own experience, and grow it organically. Obvs follow anyone you miss from Twitter, but this isn't a 1:1 replacement; have fun, follow your instincts.
Some folks have asked, "why not replicate your Twitter follows?" Obviously you should do what you want, but the Twitterverse was created with a lot of perverse incentives and strange distortions. To discover what makes this design unique, you may have better luck hand-curating your experience here than simply trying to replicate something from before, which is arguably broken in weird ways. A slower, more considered approach is, I think, worth trying.
@iamjessplant Sounds like a difficult time for you Jess. Glad your mum is getting the help she needs. It sounds like you are in safe hands.
I was explaining Mastodon to my wife and how it's different from other social media sites. I explained that I find it to be an inclusive, welcoming place. I explained that nearly everyone I follow is either gay or neurodiverse or trans or disabled. I explained that it's the first place I feel like I can actually really be myself and that people here are welcoming and supportive of me being myself. And that's why I've been so happy lately. She said "why don't you tell them that?" and I said ok!
Pet death, grief, sadness and quiet
@GeorgeJulian Heartbreaking to lose a canine companion. They leave huge paw prints on our lives 🐾
Not sure how many of the people I'm connected to here are interested in #OpenJustice but have read two pieces by @jtownend today that are incredibly relatable/interesting
1) Judith's blog post: The practical reality of open justice and what can be done: reflections on the justice committee’s new report https://openinfoandideas.wordpress.com/2022/11/12/the-practical-reality-of-open-justice-and-what-can-be-done-reflections-on-the-justice-committees-new-report/
2) (Open access) Paper from last year: Remote trial and error: how COVID-19 changed public access to court proceedings https://www.tandfonline.com/doi/full/10.1080/17577632.2021.1979844 by Judith and @Maggotlaw
The official account of Photosymbols and admin for learningdisability.social - posts, replies and boosts mostly by Karl.
Photosymbols is a photo library used by people making Easy Read accessible information. We do a lot of side projects supporting people with learning disabilities in the UK including our Mastodon server.